Abstract Summaries
Abstract 1
Title: A Pilot Study of the Relationship Between
Symptoms and Hope for Palliative Home Care Patients with Cancer
The purpose
of the study was to evaluate the recruitment and data collection
procedures and to collect preliminary data on
the relationship between hope and symptoms experienced by elderly
palliative patients with advanced cancer. Open ended interviews
were conducted in the homes of 10 palliative care patients with
cancer. Qualitative data was analyzed using a grounded theory
approach. Participants described “living with hope” as
a conscious decision, which involved acknowledging reality, searching
for meaning and refocusing their hope. Their hope was refocused
from hope for a cure to hope for: a) “not suffering more”,
b) “living life to the fullest in the little time I have
left”, c) a peaceful death, d) life after death, and d) “hope
for a better life in the future” for their family. “Living
with hope” was important to the participants so that they
could live their life to the fullest, making each day count.
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Abstract
2
Title: Evaluation
of “Living with Hope” Program for Older Palliative
Home Care Patients
Elderly
palliative home care patients have said that hope is very important
to them and their families. The purpose of this study is to
develop and implement a living with hope program for elderly
palliative home care patients with cancer and to complete an
initial evaluation of the program at one home palliative care
program in Saskatchewan. The Living with Hope program was developed
by the research team, a panel of experts and palliative patients
and their families. The program is currently being tested with
60 palliative care patients with advanced cancer. Thirty will
receive the program and 30 will not. All 60 will complete a
questionnaire about hope and quality of life. The scores will
then be compared. Increasing hope may help older palliative
care patients die with dignity, in peace and comfort. This
study was completed in 2006.
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Abstract 3
Title: The Experience of Hope for Informal Caregivers
of Palliative Patients
The
purpose of this study was to explore the experience of hope
for family caregivers of palliative patients. Ten caregivers
who were living with and currently providing care to a palliative
patient at home were interviewed. They described how
their hope was like a wave, going up and down. They found
they could hang on to their hope by: a) doing what you have
to do, b) living in the moment, c) staying positive, and d)
writing your own story. The support of friends, family,
and health care professionals and connecting with something
bigger and stronger helped them hang on to hope.
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Abstract
4
Title: A
Pilot Study of a Living with Hope Program for Informal
Caregivers of Palliative Home Care Patients
The
overall purpose of this pilot study was to develop a living
with hope
program for family caregivers that will increase hope. There
were three phases to this study. The first phase involved
interviewing 10 caregivers about their hope and what helps or
hinders it. The second phase was to develop the program
based on what the caregivers said. Then the third phase
was to pilot test the program with 10 family caregivers. The
caregivers were asked to evaluate the living with hope program
and make suggestions for changes.
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Abstract
5
Title: The
hope experience of formal palliative caregivers
The purpose of the study was to describe the experience of hope of formal palliative caregivers (doctors, nurses, social workers, etc). Those who were attending the Saskatchewan Hospice and Palliative Care Association meetings May 12, 2004 were asked to complete a questionnaire about their hope. One hundred and thirteen participants completed the questionnaires.
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Abstract
6
Title: The Experience of Hope in Bereaved
Caregivers of Palliative Care Patients
The purpose of this study was to explore the experience, meaning, and processes of hope for a caregiver during bereavement, within the first year after the death of their spouse from cancer. Women, ages 60 years and older, who provided care for their spouse, were interviewed and asked to keep a short diary of hope over a 1 to 2 week period. A grounded theory was developed from the interview and diary data that helps to explain these women’s concerns relating to hope, and how they manage to stay hopeful in a difficult situation.
Data collection began in October 2007 and was completed in August 2008.
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Abstract 7
Title: The Experience of Hope in Family Caregivers of Persons with Dementia
The purpose of this study was to explore the experience of hope for family members caring for a person with dementia. Seventeen family members actively caring for persons with dementia in the Sunrise Health Region were asked questions about their hope. Participants described their hope to be able to continue care giving and for “good days” for their family member with dementia. Grief and loss hindered their hope. The participants described continually renewing their everyday hope, by “coming to terms”, finding positives and being aware of possibilities.
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Abstract
8
Title: Relationships among Hope, Feelings of Control and Job Satisfaction of Continuing Care Assistants
The purpose of this study was to explore to examine relationships of hope, feelings of control and job satisfaction of Continuing Care Assistants and to describe their hope experience. Sixty four Continuing Care Assistants completed questionnaires before attending a conference on hope that was sponsored by the Extension Division at the Saskatchewan Institute of Applied Technology June 12 and 13th 2007. As their hope increased so did their feelings of control and job satisfaction. Ways to increase their hope were also suggested.
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Abstract
9
Title: The Social Construction of the Meaning of Hope at the End of Life
Hope is very important to people with cancer at the end of life. The purpose of this study was to explore what hope means to older palliative patients with advanced cancer, their family member and the patient’s primary nurse. It also explored the meaning of hope found in printed media (newspapers). Three groups composed of a palliative cancer patient, their family member and the patient’s primary nurse were asked to talk about hope. Newspaper articles on hope and cancer were also analyzed. Newspaper articles were about cancer prevention, treatment and cure and youth. This is in contrast to the participant’s discourse of hope associated with comfort, relationships and a peaceful death.
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Abstract
10
Title: The experience of Hope of Palliative Care Registered Nurses
The purpose of this research is to explore the experience and social processes of hope of Registered Nurses (RNs) who provide palliative care in community settings. Purposeful theoretical sampling will be used to sample 15-20 palliative care RNs who will take part in approximately 2 to 3 open-ended interviews and who will be asked to keep a short daily journal on hope for a 1 to 2 week period. Interview questions will focus on what hope means to them, how hope influences their care of palliative patients, and the positive and negative influences on their hope. The objective in conducting this research will be to generate theory that will reflect the uniqueness of palliative nursing practice and enhance the quality of the work life of palliative care nurses. Data collection for this study began in June 2008 and is ongoing.
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Abstract 11
Title: Using Ethnodrama to Disseminate Research Findings on the Hope Experience of Primary Caregivers of Persons with Alzheimers Disease
Ethnodrama is an innovative knowledge translation approach as research findings are presented by way of performances. The purpose of this study was to use ethno-drama to present research findings on the hope experience of primary caregivers of persons with Alzheimers Disease. Primary caregivers of persons with Alzheimers Disease participated in 5 workshops and 2 performances. Individual follow up interviews and audience surveys suggested that the ethnodrama was effective in increasing hope in primary caregivers of persons with Alzheimers Disease.
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Abstract
12
Title: Living with Hope: Developing a Psychosocial Supportive Program for Rural Older Women Caregivers of Spouses with Advanced Cancer
The purpose of this study is to further develop and test the Living with Hope Program by finding out more about how and how long it might work. We want to see if it will improve quality of life of active and bereaved older rural women of persons with advanced cancer and if it will decrease the number of prescriptions and doctor visits over one year. Two hundred rural older women caring for a spouse with advanced cancer will be asked to take part in this study. Their feelings of control, loss and grief, quality of life and hope will be measured over a year. The numbers of time they visit their physician and how many prescriptions they have over the year will also be collected. This study will contribute to the refinement of a Living with Hope Program that may improve quality of life and personal health of older rural women caring for their spouse with advanced cancer and those who subsequently become bereaved.
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